As the summer begins to come to an end. Zoe faced one of her fears this weekend.  She can officially swim under water in her own “Zoe style way”. For Zoe it was a great summer.. However, her pop is now having some issues with his eye again, so please continue to keep us in your prayers.  And I’ll sign off with a photo of our underwater swimmer..

ZOE HAD HER 30 + SURGERY ON OCTOBER 27 AT “BOSTON CHILDREN’S”, AND SHE DID VERY WELL…ZOE IS JUST SUCH AN AMAZING “KIDDO”…WE CALL HER “OUR TWEENER”…MATURE IN SO MANY WAYS, YET STILL A CHILD…THIS YEAR MAKES THE “10TH” YEAR SINCE ZOE HAD THE “LIFE SAVING” “TITANIUM RIB IMPLANTS”…NOW MORE COMMONLY KNOWN AS “VEPTRS”…NO WORDS I COULD WRITE HERE WOULD EVER DISCRIBE THE GRATITUDE WE FEEL TO DR. JOHN EMANS, AND THE TEAM AT “BOSTON CHILDRENS”, OR DR. ROBERT CAMPBELL, AND THE COUNTLESS OTHERS WHO HAVE MADE THESE LAST 10 YEARS WITH ZOE POSSIBLE FOR US…IN THE SPRING OF 2000 HERSHEY DOCS WERE TELLING US ZOE HAD JUST MONTHS TO LIVE…BUT THERE WAS ONE SLIM CHANCE…”AN EXPERIMENT”…THUS OUR QUEST TO “BOSTON”…WHERE ZOE BECAME THE “108TH” IN THE WORLD TO HAVE THESE “IMPLANTS” THAT NOW KEEP ABOUT 500 “KIDDO’S” ALIVE…ZOE LIFE HAS NEVER BEEN EASY…BUT THAT IS SOMETHING YOU WILL NEVER HERE FROM HER, OR HER MOM…IT AMAZES ME STILL HOW MUCH ZOE IS LIKE HER “MOMMY”…THEY ARE GENTLE AND TUFF AT THE SAME TIME…AND NOTHING STOPS THEM…”POP” HAS HAD A VERY TUFF YEAR…PACEMAKER IN JUNE, BLOOD CLOTS IN BOTH EYE, EYE SURGERY, AND BLINDNESS..BUT THE BATTLE RAGES ON…NO “GIVING UP” IN THE “LAMBERT HOME”…”ZOE’S CREW” (MY 2 GRANDSONS) ARE DOING WELL…EJ IS AN A STUDENT IN THE 4TH GRADE, AND WILLIAM, WELL LETS JUST SAY “WILL” KEEPS EVERYONE BUSY…THE “LAMBERT FAMILY” IS NOT WITHOUT “CHALLENGES”…AND WE CANNOT “DIRECT THE WIND”…BUT WE CAN “ADJUST OUR SAILS”…HAPPY NEW YEAR….

VERY SAD TO SAY THAT ZOE HAS BEEN RECEIVING TERRIBLE SPAM…AMAZING AND UNBELIEVALBE THAT SOMEONE WOULD SEND ANYONE, LET ALONE A CHRONICALLY ILL CHILD SUCH THINGS…

THANKS, ZOES NANA

THE LAMBERTS

We are headed to boston next weekend for her 33nd operation on the 27th so please remember to keep her in your prayers.  Will post from Boston.

Zoe is now in 6th grade. It is hard to believe.  My baby is going to be 12 in feb.  Where has the time gone???  Things have been going good for Zoe.

However not for her pop.  My father had eye surgery about 7 weeks ago and is blind in his right eye.  So he can not drive or anything.

Zoe has had 2 CVS episiodes since July. However her last one only lasted 24 hours which was a blessing.

Her cousin Will is now undergoing tests, he had an MRI at CHOP this morning and they found three cysts on his brain. They are going to keep an eye on them. He has to go back in about two weeks for a spinal tap.  So please keep them in your prayers.

Zoe’s next surgery will be next month on the 27th.

Until next time

God Bless

Arlene

GOOD NEWS THOUGH IS THAT SHE WAS NOT SET OFF INTO A “CVS” ATTACK…AND THAT IS WITH BEING OFF THE MEDICINES “AMITRIPTYLINE” FOR ABOUT 7 WEEKS NOW…WE ALSO HAD ZOE TO “CHILDREN’S HOSPITAL OF PHILADALPHIA 2 WEEKS AGO, AND MET WITH THE PED. IN SPINA BIFIDA CLINIC, AND THEIR THINKING IS THE PROBLEM WITH THE LEGS AND THE DISCOLORATION (PURPLE BLUE FROM TOE TO JUST BELOW BOTH KNEES) IS CIRCULATION PROBLEMS CAUSED BY HER “SACRAL AGENESIS” AND THE WEIGHT GAIN OF THE PAST 2 YEARS…ZOE IS NOW REDUCED TO JUST 2 CANS OF PEDISURE A DAY, AND IS DOING VERY WELL WITH THAT…PICKING A LITTLE MORE ON FOOD, AND AS MUCH AS SHE LOVES HER “PEDISURE” SHE IS RESIGNED TO THE FACT THAT IT MUST BE LIMITED, AND WE ARE VERY PROUD OF HER FOR THAT…SHE HAS HAD SOME WEIGHT LOSS ALREADY, AND WE WILL BE WATCHING HER LEGS, FOR IMPROVEMENT…IF NOT, WE WILL BE MEETING WITH NEURO, AND HEART SOME TIME SOON…

SCHOOL WILL SOON BE COMING TO AN END, AND WE ARE GEARING UP FOR THE “VATER/VACTERL CONFERENCE” IN JUNE IN PHILADELPHIA, AND THEN ON TO 2 WEEKS AT THE BEACH WITH ZOE, AND FAMILY AND CLOSE FRIENDS…

HAPPY SPRING TO EVERYONE, AND STAY WELL…

GOD BLESS….