JUST ANOTHER FEW DAYS LEFT AND WE WILL ENTER A “NEW YEAR”…THANKING GOD, FOR GETTING US ALL THRU, THE “OLD ONE”….

ZOE HAD HER 30 + SURGERY ON OCTOBER 27 AT “BOSTON CHILDREN’S”, AND SHE DID VERY WELL…ZOE IS JUST SUCH AN AMAZING “KIDDO”…WE CALL HER “OUR TWEENER”…MATURE IN SO MANY WAYS, YET STILL A CHILD…THIS YEAR MAKES THE “10TH” YEAR SINCE ZOE HAD THE “LIFE SAVING” “TITANIUM RIB IMPLANTS”…NOW MORE COMMONLY KNOWN AS “VEPTRS”…NO WORDS I COULD WRITE HERE WOULD EVER DISCRIBE THE GRATITUDE WE FEEL TO DR. JOHN EMANS, AND THE TEAM AT “BOSTON CHILDRENS”, OR DR. ROBERT CAMPBELL, AND THE COUNTLESS OTHERS WHO HAVE MADE THESE LAST 10 YEARS WITH ZOE POSSIBLE FOR US…IN THE SPRING OF 2000 HERSHEY DOCS WERE TELLING US ZOE HAD JUST MONTHS TO LIVE…BUT THERE WAS ONE SLIM CHANCE…”AN EXPERIMENT”…THUS OUR QUEST TO “BOSTON”…WHERE ZOE BECAME THE “108TH” IN THE WORLD TO HAVE THESE “IMPLANTS” THAT NOW KEEP ABOUT 500 “KIDDO’S” ALIVE…ZOE LIFE HAS NEVER BEEN EASY…BUT THAT IS SOMETHING YOU WILL NEVER HERE FROM HER, OR HER MOM…IT AMAZES ME STILL HOW MUCH ZOE IS LIKE HER “MOMMY”…THEY ARE GENTLE AND TUFF AT THE SAME TIME…AND NOTHING STOPS THEM…”POP” HAS HAD A VERY TUFF YEAR…PACEMAKER IN JUNE, BLOOD CLOTS IN BOTH EYE, EYE SURGERY, AND BLINDNESS..BUT THE BATTLE RAGES ON…NO “GIVING UP” IN THE “LAMBERT HOME”…”ZOE’S CREW” (MY 2 GRANDSONS) ARE DOING WELL…EJ IS AN A STUDENT IN THE 4TH GRADE, AND WILLIAM, WELL LETS JUST SAY “WILL” KEEPS EVERYONE BUSY…THE “LAMBERT FAMILY” IS NOT WITHOUT “CHALLENGES”…AND WE CANNOT “DIRECT THE WIND”…BUT WE CAN “ADJUST OUR SAILS”…HAPPY NEW YEAR….

JUST WANTED TO ASK THAT YOU WRITE “QUESTBOOK” AND LEAVE MAIL, QUESTION OR COMMENTS AT  ”JOBEY44@AOL.COM”

VERY SAD TO SAY THAT ZOE HAS BEEN RECEIVING TERRIBLE SPAM…AMAZING AND UNBELIEVALBE THAT SOMEONE WOULD SEND ANYONE, LET ALONE A CHRONICALLY ILL CHILD SUCH THINGS…

THANKS, ZOES NANA

ZOES SURGERY FOR HER “VEPTR EXPANSION, ON OCTOBER 27TH WENT EXTREMELY WELL…SHE STILL HAS YET TO COMPLAIN, AFTER ALMOST 10 YEARS OF THIS…SHE IS TRULY AN AMAZING KIDDO…THIS WAS MY FIRST TIME TO DRIVE TO BOSTON….ZOE’S POP HAS BEEN QUITE ILL WITH HEART FAILURE, AND SINCE HIS PACEMAKER, HE DEVELOPED A BLOOD CLOT IN HIS EYE, AND HAS BEEN BATTLING BLINDNESS, SURGERIES, AND PROCEDURES SINCE SPRING…SO THE BATTLES CONTINUE TO RAGE FOR OUR FAMILY….BUT ZOE HAS BEEN A WONDERFUL “TEACHER” FOR US ALL….”NEVER SAY NEVER”….LIVE IN THE DAY…CHRISTMAS SEASON HERE IN OUR HOUSE HAS BEGONE…DECORATION A BIT MORE MINIMAL THAN USUAL, BUT JUBILANT NONE THE LESS…”POP” HAS EYE SURGERY ON DECEMBER 15TH, AND WE ARE PRAYING THAT HIS SIGHT IS RESTORED, AND LOOKING FORWARD TO A GREAT CHRISTMAS, AND A HEALTHY NEW YEAR FOR ONE AND ALL…

THE LAMBERTS

Zoe has been doing rather well these last few months.  We have had a few minor bumps in the road with a few cvs attacks but they were not to bad.

We are headed to boston next weekend for her 33nd operation on the 27th so please remember to keep her in your prayers.  Will post from Boston.

Zoe is now in 6th grade. It is hard to believe.  My baby is going to be 12 in feb.  Where has the time gone???  Things have been going good for Zoe.

However not for her pop.  My father had eye surgery about 7 weeks ago and is blind in his right eye.  So he can not drive or anything.

Zoe has had 2 CVS episiodes since July. However her last one only lasted 24 hours which was a blessing.

Her cousin Will is now undergoing tests, he had an MRI at CHOP this morning and they found three cysts on his brain. They are going to keep an eye on them. He has to go back in about two weeks for a spinal tap.  So please keep them in your prayers.

Zoe’s next surgery will be next month on the 27th.

Until next time

God Bless

Arlene

ZOE HAD AN ENJOYABLE EASTER, BUT WAS DOWN A LITTLE WITH A COLD…

GOOD NEWS THOUGH IS THAT SHE WAS NOT SET OFF INTO A “CVS” ATTACK…AND THAT IS WITH BEING OFF THE MEDICINES “AMITRIPTYLINE” FOR ABOUT 7 WEEKS NOW…WE ALSO HAD ZOE TO “CHILDREN’S HOSPITAL OF PHILADALPHIA 2 WEEKS AGO, AND MET WITH THE PED. IN SPINA BIFIDA CLINIC, AND THEIR THINKING IS THE PROBLEM WITH THE LEGS AND THE DISCOLORATION (PURPLE BLUE FROM TOE TO JUST BELOW BOTH KNEES) IS CIRCULATION PROBLEMS CAUSED BY HER “SACRAL AGENESIS” AND THE WEIGHT GAIN OF THE PAST 2 YEARS…ZOE IS NOW REDUCED TO JUST 2 CANS OF PEDISURE A DAY, AND IS DOING VERY WELL WITH THAT…PICKING A LITTLE MORE ON FOOD, AND AS MUCH AS SHE LOVES HER “PEDISURE” SHE IS RESIGNED TO THE FACT THAT IT MUST BE LIMITED, AND WE ARE VERY PROUD OF HER FOR THAT…SHE HAS HAD SOME WEIGHT LOSS ALREADY, AND WE WILL BE WATCHING HER LEGS, FOR IMPROVEMENT…IF NOT, WE WILL BE MEETING WITH NEURO, AND HEART SOME TIME SOON…

SCHOOL WILL SOON BE COMING TO AN END, AND WE ARE GEARING UP FOR THE “VATER/VACTERL CONFERENCE” IN JUNE IN PHILADELPHIA, AND THEN ON TO 2 WEEKS AT THE BEACH WITH ZOE, AND FAMILY AND CLOSE FRIENDS…

HAPPY SPRING TO EVERYONE, AND STAY WELL…

GOD BLESS….

ZOE IS BACK IN THE HOSPITAL WITH A “CYCLIC VOMITING” ATTACK…ONLY 3 WEEKS SINCE THE LAST ONE, AND UNFORTUNATLY SPENDING ANOTHER VALENTINES DAY IN THE HOSPITAL…LAST YEAR SHE WAS IN PHILA. WITH PNEUMONIA.BUT SHE IS KEEPING HER USUAL “UPBEAT” SELF…

SHE IS ALSO BATTLING PROBLEMS WITH HER LEGS TURNING PURPLE/BLUE FROM THE TOES TO JUST BELOW HER KNEES….THIS HAS PLAGUED HER FOR THE LAST YEAR, AND THE THINKING IS NOW IS HAS TO DO WITH HER “SACRAL AGENESIS”…ZOE WAS BORN MISSING 3 OF THE 5 SACRUM BONES…WE WILL BE LOOKING INTO THIS FURTHER, AS SOON AS WE CAN…

HOPEFULLY ZOE WILL BE COMING HOME WITHIN THE NEXT DAY OR ZOE…THIS LOUSY “CVS” SEEMS TO WITH EACH EVENT NOW, LEAVE HER WITH A COUGH???  AGAIN, ANOTHER “WHY?”

GOOD NEWS IS, EVEN THOUGH THIS ATTACK IS JUST 3 WEEKS FROM THE LAST, HER LAST 3 WEEKS HAVE BEEN FULL AND WONDERFUL….

GOD BLESS…